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PHARMASICKLE’S FLAGSHIP INNOVATION

Transforming Sickle Cell Care Through Innovation

NOW IN BETA TESTING

PharmaSickle™ Visit Prep is a patient- and caregiver-centered tool designed to help people living with sickle cell disease organize important information, prepare for healthcare visits, and communicate their needs with greater clarity and confidence.

Organize

Bring important information together before the visit.

Healthcare Visits Can Be Difficult to Navigate

For people living with sickle cell disease, a healthcare encounter may involve pain, stress, unfamiliar practitioners, repeated questions, and important details that are difficult to recall in the moment. Parents and caregivers may also carry years of treatment knowledge that needs to be communicated quickly and clearly.
PharmaSickle™ Visit Prep helps users think through important information before the encounter so they can arrive more organized, better prepared, and ready to participate in the conversation about their care.

Prepare

Think through symptoms, concerns, questions, and care priorities.

Communicate

Use a structured visit summary to support a clearer conversation.

Designed Around the Real Healthcare Journey

Visit Prep guides patients and caregivers through a simple, step-by-step experience based on the type of healthcare encounter they are preparing for.

Get Started

Show how a patient or caregiver begins the experience and selects the appropriate preparation pathway.

Prepare for a Scheduled Visit

Show the experience for organizing information before a routine, specialist, or follow-up appointment.

Prepare for an Emergency Room Visit

Show the faster pathway designed to capture essential information when an emergency visit is unexpected and time-sensitive.

Review the Visit Preparation Summary

Show how the user reviews the organized information before or during the healthcare encounter.

Who Is PharmaSickle™ Visit Prep For?

People Living With Sickle Cell Disease

Adults and young adults who want help organizing their concerns, questions, symptoms, and relevant health information before a planned or unexpected healthcare visit.

Visit Prep may be used before scheduled appointments, specialist visits, follow-up care, urgent care, or an emergency room visit.

Young People Transitioning to Adult Care

Young people beginning to take a more active role in understanding their healthcare needs, preparing questions, and communicating directly with practitioners.

Parents and Caregivers

Parents, family members, and other caregivers who help communicate care history, patient needs, previous experiences, and important information during healthcare encounters.

Supporting Everyone in the Healthcare Encounter

For the Patient

For the Caregiver

For the Healthcare Practitioner

Supports greater preparation, organization, and confidence when explaining concerns, asking questions, and participating in healthcare conversations.

Provides structure for sharing observations, care history, previous experiences, and the information they believe is important to the patient’s care.

Offers a more organized starting point for understanding the patient’s concerns, priorities, and reported experiences while supporting a focused conversation during the encounter.

Better Preparation → Clearer Communication → A More Informed Encounter

Healthcare Practitioners Are Essential Partners

PharmaSickle™ Visit Prep works best when patients and caregivers feel comfortable using the information they prepared to participate in the healthcare conversation.
Healthcare practitioners can support the experience by recognizing the Visit Prep summary as a patient-prepared communication resource, reviewing relevant information with the patient, asking clarifying questions, and encouraging meaningful participation in care discussions.
The tool is not intended to replace clinical evaluation, medical records, professional judgment, or direct communication. It is designed to help patients and caregivers arrive better prepared for that communication.

Listen to the patient’s priorities

Review the patient-prepared summary

Ask questions and clarify information

Support shared understanding

HELP US STRENGTHEN THE EXPERIENCE

PharmaSickle™ Visit Prep
Is Now in Beta Testing

We are gathering feedback from people living with sickle cell disease, parents, caregivers, healthcare practitioners, and community partners to help improve the Visit Prep experience before its broader release.

Ask Maggie

Coming Soon

Your supportive guide through PharmaSickle® Visit Prep.

Ask Maggie helps you understand application features, prepare information, make sense of general healthcare terms, and organize questions for your healthcare team.

Maggie’s Tip

Why am I being asked this?

Help me understand

What should I have ready?

Turn this into a question for my care team.

Safety note: Ask Maggie provides general educational and navigation support. It does not provide medical advice, diagnosis, treatment recommendations, or emergency care.

Advancing Solutions via Evidence-Based Research

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